Essie Ruth

One Chronic Year: a project dear to my heart

Hello my darlings.

If you’ve been a long-time reader of this blog, you’ll know that in addition to being an intensely creative, busy, curious, and generally chatty person, I also struggle with chronic illness.

And I have the double whammy of both physical and mental conditions.

These features of the Essie-package are ones that effect my life – andΒ that of my family – in profound and far-reaching ways. And they’re ways that I’m still coming to understand.

In an effort to get to grips with this, I’ve decided to film my life for one year, and really create a picture of what it’s like to live with chronic illness. Because that’s the thing about it being chronic: it’s ongoing. It’s impact is such that it can really only be truly understood when looked at inΒ a wide angle, longitudinal way. So that’s what I’m going to attempt.

The first thing I did was make an introductory video, outlining the various conditions with which I’ve been diagnosed, some of their symptoms, and how they interact. You can find that here:

And starting on the first day of 2017, I began to vlog. I’ll be uploading weekly videos all year, and painting a picture of what this is like (the first couple are a little long at around 20 mins each, but fear not, I’m getting better at editing, and they’ll get snappier as I go).

You can find week 1 here:

Here is a link to the channel if you would like to subscribe. It would mean the world to me if you would.

Whether you’re a fellow sufferer of mental or chronic illness, or you’re just interested to learn what it’s like, I hope you’ll find it encouraging or enlightening.

 

I’ll be back soon with some other video things – and of a much more cheerful and crafty nature!

x

 

 

 

3 Comments

  1. Reply

    Vicky

    January 16, 2017

    Dear Essy, My heart goes out to you,
    I know what ME is like as I have Fibromyalgia and fatigue is a big part of that coupled with pain.
    I think you are brave to bare your condition to the scrutiny of the WWW and I’m sure if more people did this there would be a lot less prejudice, especially of (hidden illnesses) like Depression Fibro and ME.
    I wish you a fast healing of this current flare and as I’m just recovering from a Fibro flare I know all of us with these conditions will be sending healing vibes too.
    Love Vickyxx

    • Reply

      Essie

      January 24, 2017

      Oh, Vicky, I’m so sorry that this is your reality. Sending you strength and solidarity <3

  2. Reply

    Keryn

    January 27, 2017

    Hi Essie, Ha HA when you said about how you love magazines for reading but also chopping up I could so relate. Love your crafty style x thanks for sharing this journey.

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